Autism Language Mini Series Episode 1: Amber Grant, Parent

by Jessica Hill, COTA/L & Rachel Harrington, COTA/L, AC April 03, 2023

Autism Language Mini Series Episode 1: Amber Grant, Parent

 

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Autism Language Mini Series Episode 1: Amber Grant, Parent

 

April is Autism Acceptance Month. This month, we’re releasing one new episode each week, in addition to our regularly scheduled episodes. These episodes are all about the language surrounding Autism. We had the privilege of interviewing several people for this Mini Series and we’re excited for you to listen in!

Amber Grant is the mother to 2 special needs individuals, a wife, an advocate, and health care advocate. She deeply values authenticity and transparency and gravitates towards growing people. Amber loves chocolate and expensive margaritas, has over 100 pairs of earrings and is a perfume snob. She processes and heals in the outdoors. Amber is not afraid of those who grieve and wants to see more empathy in society. She also advocates and trains churches to be a more equipped environment for those with disabilities.

Find Amber on Instagram @courageoushumans

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Autism Language Mini Series Episode 1 - Amber Grant, Parent

Language shapes how we see the world, especially when discussing autism. Over the years, the terminology surrounding autism has evolved, sparking meaningful conversations about inclusivity and respect. 

But Amber Grant—a parent of an autistic adult and a younger teenager—shares that language is only part of the story. At its core, fostering meaningful relationships and understanding is what truly matters.

The Evolution Of Autism Terminology

Amber recalls a time when terms like "autistic" and "person with autism" were used interchangeably without much focus on correctness. But there’s been a shift in recent years. 

Many within the autism community, particularly autistic adults, prefer identity-first language (“autistic person”) as it emphasizes autism as an integral part of who they are. Others, like some parents and professionals, lean toward person-first language (“person with autism”) to underscore the individual beyond the diagnosis.

Amber shares that while she recognizes the importance of language, her priority has always been relationships. "Our focus has been on connection," she explains, emphasizing that inclusivity comes from mutual understanding and empathy, not just terminology.

Language Matters—But It’s Not Everything

When asked about her preference for how others refer to her son, Amber revealed a refreshing perspective: "I really don’t mind whether people say my son has autism or my son is autistic. What matters is how they treat him and whether they genuinely care."

Amber emphasizes that while language can open doors, actions strengthen connections. She advocates for grace and patience, stressing that building genuine relationships matters more than perfecting terminology.

Challenges In Advocacy: Balancing Growth And Compassion

Advocating for autism can be a balancing act. Amber points out that creating inclusive environments sometimes means letting go of perfectionism. 

"If someone’s heart is in the right place, we should focus on that effort instead of critiquing every misstep," she shares. This mindset can encourage more people to engage with the autism community rather than fear making mistakes.

However, Amber also recognizes the exhaustion that can come with advocacy. "There are days when I don’t want to explain my situation or help others feel comfortable; Sometimes, I just need people to meet me halfway," she admits, reflecting on the emotional toll of caregiving and advocacy.

Building Bridges Through Connection

Amber’s experience underscores a powerful lesson: Authentic connection often starts with nonverbal communication. Her son, Luke, thrives on compassionate interactions and can sense others’ intentions through tone and actions. 

Parents, therapists, and educators can take this to heart by focusing on creating supportive, relationship-driven environments. Whether through sensory activities, shared interests, or simply spending time together, these connections form the foundation for growth and acceptance.

Actionable Tips For Fostering Inclusivity

1. Focus On Relationships First 

When engaging with autistic individuals, prioritize building a bond over perfecting the terminology.

2. Be Patient & Graceful

Recognize that learning takes time, and everyone starts somewhere. Encourage efforts to connect rather than critiquing initial mistakes.

3. Educate Yourself

Use resources, books, and online communities to deepen your understanding of autism. This can make interactions more meaningful and informed.

4. Empower Nonverbal Communication

Remember that body language, tone, and empathy often resonate more than words. Be intentional with your actions.

5. Create Inclusive Spaces

Whether at home, school, or community events, work to make environments welcoming and accessible for individuals with diverse needs.

Final Thoughts: Choosing Connection Over Perfection

Amber’s story is a powerful reminder that while language matters, it’s not essential to fostering inclusivity. Authentic relationships, empathy, and a willingness to grow genuinely make a difference.

Amber says,"I want my son to have a legitimate place in the community, not just accommodation. He has talents, gifts, and value to share; That’s the goal we should all be striving for."

 

BORING, BUT NECESSARY LEGAL DISCLAIMERS

While we make every effort to share correct information, we are still learning. We will double check all of our facts but realize that medicine is a constantly changing science and art. One doctor / therapist may have a different way of doing things from another. We are simply presenting our views and opinions on how to address common sensory challenges, health related difficulties and what we have found to be beneficial that will be as evidenced based as possible. By listening to this podcast, you agree not to use this podcast as medical advice to treat any medical condition in either yourself or your children. Consult your child’s pediatrician/ therapist for any medical issues that he or she may be having. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Rachel Harrington, Harkla, Jessica Hill, or any guests or contributors to the podcast, as well as any employees, associates, or affiliates of Harkla, be responsible for damages arising from use of the podcast.

Keep in mind that we may receive commissions when you click our links and make purchases. However, this does not impact our reviews and comparisons. We try our best to keep things fair and balanced, in order to help you make the best choice for you.


This podcast should not be used in any legal capacity whatsoever, including but not limited to establishing “standard of care” in a legal sense or as a basis for expert witness testimony. No guarantee is given regarding the accuracy of any statements or opinions made on the podcast.

Jessica Hill, COTA/L & Rachel Harrington, COTA/L, AC
Jessica Hill, COTA/L & Rachel Harrington, COTA/L, AC

Rachel Harrington, COTA/l, AC, CPRCS, and Jessica Hill, COTA/L, CPRCS are Harkla's in-house Certified Occupational Therapy Assistants (COTA) and Certified Primitive Reflex Clinical Specialists. They have been working with children for over 6 years in outpatient settings. They specialize in creating easy-to-digest, actionable content that families can use to help their child's progress at home. Jessica and Rachel are the in-house experts, content creators, and podcast hosts at Harkla! To learn more about Jessica and Rachel, visit the Harkla About Us Page. Make sure to listen to their weekly podcast, All Things Sensory by Harkla for actionable, fun advice on child development.


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