April is Autism Acceptance Month. This month, we’re releasing one new episode each week, in addition to our regularly scheduled episodes. These episodes are all about the language surrounding Autism. We had the privilege of interviewing several people for this Mini Series and we’re excited for you to listen in!
Amber Grant is the mother to 2 special needs individuals, a wife, an advocate, and health care advocate. She deeply values authenticity and transparency and gravitates towards growing people. Amber loves chocolate and expensive margaritas, has over 100 pairs of earrings and is a perfume snob. She processes and heals in the outdoors. Amber is not afraid of those who grieve and wants to see more empathy in society. She also advocates and trains churches to be a more equipped environment for those with disabilities.
Find Amber on Instagram @courageoushumans
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Language shapes how we see the world, especially when discussing autism. Over the years, the terminology surrounding autism has evolved, sparking meaningful conversations about inclusivity and respect.
But Amber Grant—a parent of an autistic adult and a younger teenager—shares that language is only part of the story. At its core, fostering meaningful relationships and understanding is what truly matters.
Amber recalls a time when terms like "autistic" and "person with autism" were used interchangeably without much focus on correctness. But there’s been a shift in recent years.
Many within the autism community, particularly autistic adults, prefer identity-first language (“autistic person”) as it emphasizes autism as an integral part of who they are. Others, like some parents and professionals, lean toward person-first language (“person with autism”) to underscore the individual beyond the diagnosis.
Amber shares that while she recognizes the importance of language, her priority has always been relationships. "Our focus has been on connection," she explains, emphasizing that inclusivity comes from mutual understanding and empathy, not just terminology.
When asked about her preference for how others refer to her son, Amber revealed a refreshing perspective: "I really don’t mind whether people say my son has autism or my son is autistic. What matters is how they treat him and whether they genuinely care."
Amber emphasizes that while language can open doors, actions strengthen connections. She advocates for grace and patience, stressing that building genuine relationships matters more than perfecting terminology.
Advocating for autism can be a balancing act. Amber points out that creating inclusive environments sometimes means letting go of perfectionism.
"If someone’s heart is in the right place, we should focus on that effort instead of critiquing every misstep," she shares. This mindset can encourage more people to engage with the autism community rather than fear making mistakes.
However, Amber also recognizes the exhaustion that can come with advocacy. "There are days when I don’t want to explain my situation or help others feel comfortable; Sometimes, I just need people to meet me halfway," she admits, reflecting on the emotional toll of caregiving and advocacy.
Amber’s experience underscores a powerful lesson: Authentic connection often starts with nonverbal communication. Her son, Luke, thrives on compassionate interactions and can sense others’ intentions through tone and actions.
Parents, therapists, and educators can take this to heart by focusing on creating supportive, relationship-driven environments. Whether through sensory activities, shared interests, or simply spending time together, these connections form the foundation for growth and acceptance.
1. Focus On Relationships First
When engaging with autistic individuals, prioritize building a bond over perfecting the terminology.
2. Be Patient & Graceful
Recognize that learning takes time, and everyone starts somewhere. Encourage efforts to connect rather than critiquing initial mistakes.
3. Educate Yourself
Use resources, books, and online communities to deepen your understanding of autism. This can make interactions more meaningful and informed.
4. Empower Nonverbal Communication
Remember that body language, tone, and empathy often resonate more than words. Be intentional with your actions.
5. Create Inclusive Spaces
Whether at home, school, or community events, work to make environments welcoming and accessible for individuals with diverse needs.
Amber’s story is a powerful reminder that while language matters, it’s not essential to fostering inclusivity. Authentic relationships, empathy, and a willingness to grow genuinely make a difference.
Amber says,"I want my son to have a legitimate place in the community, not just accommodation. He has talents, gifts, and value to share; That’s the goal we should all be striving for."
BORING, BUT NECESSARY LEGAL DISCLAIMERS
While we make every effort to share correct information, we are still learning. We will double check all of our facts but realize that medicine is a constantly changing science and art. One doctor / therapist may have a different way of doing things from another. We are simply presenting our views and opinions on how to address common sensory challenges, health related difficulties and what we have found to be beneficial that will be as evidenced based as possible. By listening to this podcast, you agree not to use this podcast as medical advice to treat any medical condition in either yourself or your children. Consult your child’s pediatrician/ therapist for any medical issues that he or she may be having. This entire disclaimer also applies to any guests or contributors to the podcast. Under no circumstances shall Rachel Harrington, Harkla, Jessica Hill, or any guests or contributors to the podcast, as well as any employees, associates, or affiliates of Harkla, be responsible for damages arising from use of the podcast.
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